Intersectionality in Sickle Cell Disease (iSCD)

This study is no longer recruiting. Stay tuned for updates on results.

This study wants to learn more about the problems people with sickle cell disease face and how they cope with them. We will talk with people from around the country to do this. This study will help us find gaps in treatment and develop a program to improve pain care. Overall, we want to better help people living with sickle cell disease.

We want to hear your personal story in a private interview. The Zoom or phone interview will be with a trained staff member from the University of Pittsburgh.

• The interview will take about 1 hour. You will receive a $75 gift card for your time. We will ask questions about pain, disability, stigma (negative beliefs or attitudes about something), and discrimination (unfair treatment).    
• Your interview will be confidential. This means we will not share what you say with your healthcare team or anyone outside our research team.

To be in the study, you must be:

• 18 years or older
• Black, African American, or of African descent
• Diagnosed with sickle cell disease
• Live in the United States
• Can read and speak in English
• Have internet and a device to do the study interview and survey

We are a research team at the University of Pittsburgh. Your participation is voluntary. This means you can stop being in the study at any time. We will keep the information you share with us confidential. This means we will not share your information with your medical team or anyone outside our research team.

Study Team

PI: Lakeya McGill, PhD

Coordinator: Emily McFerran

• If you have any questions or concerns, please contact Dr. Lakeya McGill or Emily McFerran at (412) 883-0956 or painlab@pitt.edu.
• For information about your rights as a participant, contact the Human Subjects Protection Advocate at 1-866-212-2668.